As Canada redefines its place in the world, rare disease patients are still looking south

In an era where Canada is talking about leadership, innovation, and economic competitiveness, the fact that patients must routinely cross the border for care should trouble all of us.
Marjorie Michel
Health Minister Marjorie Michel. The federal government has tried to address some of the gaps through past funding commitments, but investment alone isn’t the solution, writes Kait LaForce.

Rare Disease Day, the annual campaign dedicated to conditions that affect roughly one in 12 Canadians, is often framed as a moment to celebrate progress. But many patients will be thinking about the work still ahead. For Canadians living with a rare disease, there is a share...

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