Canada needs its rare disease strategy to get the health-care system back on track

Only 65 per cent of rare disease treatments make it to Canada. Health-care workers in the rare disease field, and their patients, need a light at the end of the tunnel.
Health Minister Jean-Yves Duclos’ mandate letter from the prime minister directs him to move forward on a national strategy on high-cost drugs for rare diseases.
It has been a year since I left Europe to lead Alexion AstraZeneca Rare Disease’s operations in Canada. During this time, I have immersed myself in the country’s complex health-care and rare disease operating environment, seeing real progress being made, even as the resiliency and sustainability...

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